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Initial discovery and diagnosis
The before times
< The before times    
     

On October 16, 2023, I got the results of an MRI that showed a large mass consistent with a meningioma, a type of tumor of the meninges, which is the tissue separating the skull and the brain. But let's go back a bit.

Things kind of start in March 2023. I had been a software engineer for over 30 years, married to my college sweetheart Julie, with two grown kids. Then the company I was working at collapsed and laid everybody off. I looked for work, but I couldn't seem to get very motivated about it.

I started thinking - maybe there’s other things to do, maybe there are different kinds of work. But I didn't really do anything all summer. This caused increasing tension in the household. Then in July I had a weird memory thing. I woke up and couldn’t remember what happened the day before. The whole day was just a blank. It was very upsetting, but I don't think I told anyone. I re-traced my steps, by looking at my emails and texts and other clues, and I sent myself an email about it. And then I went right back to not doing much. It happened again in August and then again in September. In August I told Julie and I saw my doctor, who took me off the anti-cholesterol medication I was taking. The third time led to an MRI, and on October 16, they brought me in and showed me the meningioma.

Meningiomas are "benign" in that they aren't cancerous, but they are far from being non-impactful to the lives of people who experience them and the people around them. After a few visits with different doctors, I was very lucky to get a referral to a neurosurgeon in Houston who specialized in meningiomas, and he agreed to take me as a patient. Surgery was scheduled for November 9. It was successful and I felt better immediately. I noticed pretty quickly that my executive function (I sometimes call it my 'give a shit-ness') returned. I also noticed that I was feeling emotions on a deeper level than I had in years. I frequently describe it like coming out of a smoky room - you might not notice how bad it was in there until you come out into the fresh air. Suddenly I was crying at sad songs, laughing at funny stories, and feeling things I hadn't felt in years. Unfortunately, I was still unemployed. My marriage was still under a lot of strain. Years of couples counseling had helped some, and years of personal development work with the Man Kind Project had laid a foundation, but in January, Julie and I separated. I needed a source of income right away so I started a Handyman company. I Can Do That handyman services has been in business since January 2024 and is doing very well.

MRI, top view

MRI, top view

Another MRI top view

Another MRI top view

MRI, front and side views

MRI, front and side views

Another clear top view

Another clear top view

more MRI

more MRI

Before and after getting my head shaved. They said I didn't need to, but I wanted to.

Before and after getting my head shaved. They said I didn't need to, but I wanted to.

Nice dome

Nice dome

In the doctors office

In the doctors office

In Houston, day before surgery

In Houston, day before surgery

Night before surgery

Night before surgery

Dad getting his head shaved in support

Dad getting his head shaved in support

He looks pretty good shaved!

He looks pretty good shaved!

Surgery day, probably waiting for it to end. 9.5 hours!

Surgery day, probably waiting for it to end. 9.5 hours!

Day after surgery. Big black eye!

Day after surgery. Big black eye!

The day after still - lots of wires and stuff still connected

The day after still - lots of wires and stuff still connected

Two days after, bandages off

Two days after, bandages off

Bandages off, showing the incision

Bandages off, showing the incision

Getting a visit from dad, two days after

Getting a visit from dad, two days after

Steve and dad

Steve and dad

Big hug!

Big hug!

That short hair feels funny!

That short hair feels funny!

Black eye starting to heal up. Still two days post-op.

Black eye starting to heal up. Still two days post-op.

Looking pretty good. Three days post op.

Looking pretty good. Three days post op.

Nice. Three days post op, zero out of 10 pain.

Nice. Three days post op, zero out of 10 pain.

Going home! Three days post op.

Going home! Three days post op.

Four days post op, at home. The patch is to force me to use my 'bad' eye.

Four days post op, at home. The patch is to force me to use my 'bad' eye.

Recovering nicely

Recovering nicely

T +5 days

T +5 days

One week later

One week later

One week later

One week later

Hair showing some stubble

Hair showing some stubble

Incision healing nicely

Incision healing nicely

I think these are the bruises where they put the IV lines in my leg.

I think these are the bruises where they put the IV lines in my leg.

Ten days worth of healing

Ten days worth of healing

Looking good

Looking good

A button Mom had made for me. I seemed to like telling people my story even very early.

A button Mom had made for me. I seemed to like telling people my story even very early.

November 23 - Thanksgiving

November 23 - Thanksgiving

Healing continues

Healing continues

Eye looking much better. November 25, 16 days post op.

Eye looking much better. November 25, 16 days post op.

November 25

November 25

Looking good!

Looking good!

Scar nearly invisible.

Scar nearly invisible.

December 8

December 8

December 8

December 8

December 9, one month later

December 9, one month later

December 9

December 9

A 3D print at 1:1 scale of my tumor, extracted from my MRI.

A 3D print at 1:1 scale of my tumor, extracted from my MRI.

What an actual meningioma looks like

What an actual meningioma looks like

A few more replicas

A few more replicas

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